Thyroid hell...

05.20.2022

Colorado Castle rock

“Thyroid hell...”

Hi,
Thanks for taking the time to read my story. I will keep it brief. When I was 25 I underwent pituitary surgery for Cushing's disease, to extract a tumor. Post-surgery has been all over the place. Here I am 14 years later and I still struggle with finding a balance with my thyroid medications. I’m currently on T3, Cytomel, and I want OFF. It used to work so so well for me. And now all I want are my compounding t3 meds again. I took them years ago and my doctor recently suggested I try them again. The difference is huge! All I can say is it would be TRAGIC to remove this option. The differences include but are not limited to the following-a feeling of a much smoother reaction it doesn’t jolt me like my Cytomel T3, it’s like comparing matcha tea to a strong espresso. I get jittery on the traditional meds! They have saved my life though bc I end up with SEVERE depression off of them. However, something isn’t right- I also have suffered from extreme hair loss, and every time I restart or change my dose of Cytomel I deal with clumps of hair loss. My stomach feels wacky and I get diarrhea all the time. I get hard to describe weird sensations in my head that nothing can fix, but if I don’t take my thyroid meds I’ll be hypothyroid again within a week. T3 also isn’t the problem, I tried T4 and had literally ZERO improvements in symptoms, just dealt with side effects and ultimately felt the same or worse. T3 has been my savior for 1.5+ decades and I’m not ready to give it up. On compounding T3, I have been way more stable, with zero hair loss, a smooth feeling, no weird head feelings, my mood stays up and I’m not depressed while also not anxious (like I sometimes am on conventional T3). Please please don’t take this away. It would be a travesty to soooooo many people. Additionally, the progesterone cream I got from the compounding pharmacy was perfect. I gained weight (20+ pounds) on every other one I’d tried except for this version. Thank you.

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