Without compounded hormones, I’m terrified I will lose my independence.

03.25.2022

California Petaluma

“Without compounded hormones, I’m terrified I will lose my independence.”

Custom compounded hormones are critical for my quality of life. I was hit with a debilitating case of mono along with menopause and uncontrolled asthma in 2018. Mono is Epstein Barr based and I’m one of the cases of long-mono, which is considered auto-immune. It has manifested similar to Lyme symptoms with high ongoing inflammation, fatigue, digestive, and in my case extreme allergic and asthma problems. Without compounded hormones, any hope of returning to work or leaving the house without suffering from catastrophic asthma attacks would be taken from me.
My doctor runs quarterly blood tests to ensure my hormones are just high enough to protect my brain function, joints, cholesterol, ability to reach REM sleep, and in my case lung function and migraines.
I have been offered flat rate hormonal therapies, but sadly the flat-rate approach is too high for me in some components and too low in others. This presents me with a higher than the acceptable likelihood of cancer while causing my body a debilitating system-wide cascade.
I’m a 58-year-old, educated woman who's supported herself since she was 16 years old. I have been forced to make extreme economic sacrifices to access and pay for appropriate healthcare outside of insurance due to the limitations of traditional HMO medicine while on unpaid medical leave.
I struggle every day to focus and manage my immediate needs. As it stands I can tell when my body chemistry changes because sleeping, moving, eating, competing for routine tasks, up-taking data, gets more difficult. I have friends who help point this out for me and help me schedule tests and MD appointments.
Without careful hormonal support, I’m vulnerable to swift and irreversible mental and physical deterioration.
Without compounded hormones, I’m terrified I will lose my independence.

Hear their stories. Protect their own words. Protect their access to compounded medicines.

On this page, we can only touch on the data that demonstrates the importance of compounded medicines to the lives of millions of people in this country. While the decision to take this vital therapy from patients and physicians might be profitable for big pharmaceutical companies, it will be disastrous for the millions of patients that those same pharmaceutical companies cannot serve!

We encourage the appropriate committees in both the House and Senate to hold hearings on this critical issue.

Explore our interactive map that demonstrates the importance of compounded medicines to patients all across the country. Filter these first-hand accounts by state to see just how vital compounded medicines are.