Shortly after having a botched vaginal hysterectomy (uterus ...

04.13.2021

Pennsylvania Philadelphia

“Shortly after having a botched vaginal hysterectomy (uterus ...”

Shortly after having a botched vaginal hysterectomy (uterus only) I started having vaginal pain and was finally (after about two years) diagnosed with vulva-vestibulitis. The pain was constant, but I was finally treated successfully. When I started going through menopause, the pain returned. It appears the dryness that occurs with a reduced level of estrogen was once again overstimulating the nerves and the pain returned. I tried over-the-counter products, but they all caused irritation and worsened the pain. Finally, my physician who treated me for the initial vulva-vestibulitis suggested using a compounding pharmacy where they could put the estrogen in a vehicle that was not irritating to me. He had success using a compounded estradiol product on other women like me. I have now been using the compounded estradiol for about 10 years and it has changed my life. Although my drug insurance does not cover the compounded estradiol, I find paying out-of-pocket worth every penny.

Hear their stories. Protect their own words. Protect their access to compounded medicines.

On this page, we can only touch on the data that demonstrates the importance of compounded medicines to the lives of millions of people in this country. While the decision to take this vital therapy from patients and physicians might be profitable for big pharmaceutical companies, it will be disastrous for the millions of patients that those same pharmaceutical companies cannot serve!

We encourage the appropriate committees in both the House and Senate to hold hearings on this critical issue.

Explore our interactive map that demonstrates the importance of compounded medicines to patients all across the country. Filter these first-hand accounts by state to see just how vital compounded medicines are.