Susan H. Massachusetts SWANSEA 0
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01.13.2023
Massachusetts SWANSEA

Not having proper Thyroid medications and doses can be life threatening.

I have a disabling medical condition, Mast Cell Activation Syndrome, MCAS, that causes severe allergies and chemical sensitivities. I have required compounded thyroid hormone medication which has to be made in a clear gel cap and made in an olive oil base because I am severely hyper-reactive to many dyes, preservatives, and fillers. I also need less medication than many people need. Manufactured thyroid medications don't come in the small doses I require and they have fillers that I have adverse reactions to, which can send me to the ER. Not having proper Thyroid medications and doses can be life-threatening. I have needed other compounded medications over the years since I need smaller doses that are dye free, preservative-free, and use fillers and carriers so that I will not have adverse reactions to them. For example, I had to take a low-dose hormone replacement therapy medication that was only made by a pharmaceutical manufacturer. It was made with an iodine preservative as many of the low-dose birth control medications used for HRT are made with and use dyes. I was taken away by ambulance at 1 am after my first dose with my throat tightening, vomiting and shaking out of control, and heart racing and brought to the ER for stabilization. This is just another example why I require compounded hormone medications. We are NOT all the same and some do better with custom-made compound-made medications at the doses that work for our needs.
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Hear their stories. Protect their own words. Protect their access to compounded medicines.

On this page, we can only touch on the data that demonstrates the importance of compounded medicines to the lives of millions of people in this country. While the decision to take this vital therapy from patients and physicians might be profitable for big pharmaceutical companies, it will be disastrous for the millions of patients that those same pharmaceutical companies cannot serve!

We encourage the appropriate committees in both the House and Senate to hold hearings on this critical issue.

Explore our interactive map that demonstrates the importance of compounded medicines to patients all across the country. Filter these first-hand accounts by state to see just how vital compounded medicines are.

Explore our interactive map that demonstrates the importance of compounded medicines to patients all across the country. Filter these first-hand accounts by state to see just how vital compounded medicines are.