mastocytosis

09.28.2021

Oregon McMinnville

“mastocytosis”

I was struggling to keep myself from all the swelling I was having. Right side of my face, then add left ankle, hands would become huge, the belly would swell to a mid-term pregnancy look... God knows what was going on internally! It all got much worse too, sometimes it was hard to work!
I'll note, I'm a healthy, active, in good shape, commercial photographer, always on the go, never a couch potato! I eat mostly whole & healthy food, NEVER fast food, and do most of my own cooking! I do have a sweet tooth, but don't overdo it, and don't deny it either!
It took YEARS!!! lots of stress, pain, and frustration, days when I couldn't get outta bed! FINALLY, a Dr. Kristen Price did bloodwork on me that showed high markers in the reaction/defense zone, not just allergy testing, which lead to a Tryptase test which was off the charts...
I've been married to a man with Aspergers and the stress level of that, add a few environmental reactions, and 'BAM' I wasn't doing well. She suggested a compounded drug call Ketotifen and my body started, and has since gotten much better on the swelling front! Every now & then I test the waters of not taking the Ketotifen... and it's NOT GOOD!!! I am ever grateful I found Dr. Price and she prescribed Ketotifen... It's the only thing that ever worked, and trusts me, among several docs that had no clue what to even look for... Tried a whole bunch of meds, teas, needles, and such, that DID NOT work.
I finally am living my normal life with only extreme situations bringing on any major flare-ups! And that only happens now a couple of times a year instead of weekly or daily!!!

Signed Doreen Wynja

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