James S. Arizona Scottsdale 0
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06.24.2022
Arizona Scottsdale

I've used compounded testosterone cream daily  for 18 years!

I am a (retired) physician and a patient, with experience on both ends of the prescribing encounter. As a patient, my need for hormone therapy surfaced about 18 years ago when symptoms of Androgen Deficiency Syndrome (ADS) became evident. (This was probably caused by chemotherapy for B-cell lymphoma in 1992, therapy which affected my reproductive system along with other side effects). Initially, I was started on a prescription for a major drug company's T-gel, but its expense was excessive and obtaining insurance coverage full of hoops and barriers. After a few months, my physician gave me a prescription for a compounded hormone product, which, although uncovered by insurance, was many times more accessible and much more reasonable in cost, even when paying full price out-of-pocket. It has proven to be every bit as effective clinically: my daily experience of symptom relief from ADS and my measured testosterone levels attest to the success I've had with compounded testosterone products over the last ~18 years. The loss of the ability to continue with this successful therapeutic regimen would impose a new and significant health and financial burdens on me.
The oversight and guidance of the FDA are necessary and appropriate in many cases, but my experience strongly suggests that this is not one of them. If the FDA decides to restrict hormone compounding, I will be the one to suffer the negative consequences.
Please do not interfere with my long-standing successful therapy!
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Hear their stories. Protect their own words. Protect their access to compounded medicines.

On this page, we can only touch on the data that demonstrates the importance of compounded medicines to the lives of millions of people in this country. While the decision to take this vital therapy from patients and physicians might be profitable for big pharmaceutical companies, it will be disastrous for the millions of patients that those same pharmaceutical companies cannot serve!

We encourage the appropriate committees in both the House and Senate to hold hearings on this critical issue.

Explore our interactive map that demonstrates the importance of compounded medicines to patients all across the country. Filter these first-hand accounts by state to see just how vital compounded medicines are.

Explore our interactive map that demonstrates the importance of compounded medicines to patients all across the country. Filter these first-hand accounts by state to see just how vital compounded medicines are.