I'm chronically ill with multiple illnesses, which all impac...

04.13.2021

Pennsylvania Langhorne

“I'm chronically ill with multiple illnesses, which all impac...”

I'm chronically ill with multiple illnesses, which all impact my quality of life and how I live. The hormonal cream I use is a topical medication for my vulva that greatly increases my quality of life. Prior to this medication, the medications for my other chronic conditions were so drying that I would move and my vulva skin would split open in excruciating micro tears. I was prone to chronic yeast infections, pain during sex, and constant discomfort. With this medication, I barely have to think about these issues because they've been almost entirely resolved. It's already challenging that I need to pay for this medication out of pocket because compounded medications are not covered by insurance. If you revoke or create additional barrier to access to this medication it will have a direct negative impact on my life, comfort, and health. There is no comparable prescription available from a traditional pharmacy, and if there was it probably wouldn't be one I'd be able to use due to my severe allergies to excipents in medications. Please, please, do not add any additional restrictions. You will be directly harming the people like me who need your help the most.

Hear their stories. Protect their own words. Protect their access to compounded medicines.

On this page, we can only touch on the data that demonstrates the importance of compounded medicines to the lives of millions of people in this country. While the decision to take this vital therapy from patients and physicians might be profitable for big pharmaceutical companies, it will be disastrous for the millions of patients that those same pharmaceutical companies cannot serve!

We encourage the appropriate committees in both the House and Senate to hold hearings on this critical issue.

Explore our interactive map that demonstrates the importance of compounded medicines to patients all across the country. Filter these first-hand accounts by state to see just how vital compounded medicines are.