Ali New York Roslyn 0
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04.13.2021
New York Roslyn

I have an extremely painful condition (intersistal cystitus/...

I have an extremely painful condition (intersistal cystitus/BPS (bladder pain syndrome). Getting a UTI takes the pain from a four to a 10 very quickly. I had one UTI in my life before perimenopause. Once that started, I was getting them all the time. Because of the pain, I spent most of 2019 in agony. Once my doctor started me on the compounded hormone cream, I have not had agonizing pain due to healthier tissue (no UTI's or or any other issues that has made BPS unbearable). I can confidently say that without the compounded cream my quality of life would be zero! This is a very personal problem and I would not choose to share it in cyberspace if I wasn't desperate to keep this treatment an option. Please please do not take it away!
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Hear their stories. Protect their own words. Protect their access to compounded medicines.

On this page, we can only touch on the data that demonstrates the importance of compounded medicines to the lives of millions of people in this country. While the decision to take this vital therapy from patients and physicians might be profitable for big pharmaceutical companies, it will be disastrous for the millions of patients that those same pharmaceutical companies cannot serve!

We encourage the appropriate committees in both the House and Senate to hold hearings on this critical issue.

Explore our interactive map that demonstrates the importance of compounded medicines to patients all across the country. Filter these first-hand accounts by state to see just how vital compounded medicines are.

Explore our interactive map that demonstrates the importance of compounded medicines to patients all across the country. Filter these first-hand accounts by state to see just how vital compounded medicines are.