I had a complete hysterectomy at age 39 and was put on a low...

04.13.2021

Nebraska Lincoln

“I had a complete hysterectomy at age 39 and was put on a low...”

I had a complete hysterectomy at age 39 and was put on a low dose hormone patch. After developing blood clots in my lungs, the only form of HRT I was allowed was vaginal cream, initially being Premarin. Without HRT, I had been suffering from dryness, painful sex, frequent UTI's and severe vaginitis. For years, even with Premarin, I still continued to suffer from severe periodic vaginal burning which made me miserable and often unable to sleep. I switched to Vagifem and Estrace but still experienced the horrible symptoms. Finally I was told I may be allergic to ingredients in the base of these products (alcohol & glycerin, for example). I found a compounding pharmacy which gave me an Estradiol cream in a hypoallergenic base and my vaginal burning finally disappeared. I had my life back. I need this product to stay comfortable, keep UTI's at bay, and hopefully continue to avoid needing surgery for prolapse which has developed over the years. Until I can buy a vaginal hormone cream through Walgreens, etc., that is hypoallergenic and doesn't contain ingredients like alcohol and glycerin, I need to have this resource from my compounding pharmacy in order to avoid health problems which would be very detrimental to my overall health. I implore the FDA to not impose restrictions on compounding pharmacies which would deny me a product I need and cannot obtain elsewhere.

Hear their stories. Protect their own words. Protect their access to compounded medicines.

On this page, we can only touch on the data that demonstrates the importance of compounded medicines to the lives of millions of people in this country. While the decision to take this vital therapy from patients and physicians might be profitable for big pharmaceutical companies, it will be disastrous for the millions of patients that those same pharmaceutical companies cannot serve!

We encourage the appropriate committees in both the House and Senate to hold hearings on this critical issue.

Explore our interactive map that demonstrates the importance of compounded medicines to patients all across the country. Filter these first-hand accounts by state to see just how vital compounded medicines are.