Hashimoto's Thyroiditis, Leukocytoclastic vasculitis, chronic uticaria

07.20.2021

Ohio Celina

“Hashimoto's Thyroiditis, Leukocytoclastic vasculitis, chronic uticaria”

My name is Julie. I am 60 years old. I've had 32 surgeries due to my health issues started in my late 30's. I had joint, muscle pain, fatigue, gastrointestinal issues and an over all feeling of un-wellness. I saw many physicians including my family physician, many surgeons, gastrointestinal physicians, 3 different rheumatologists, 3 different allergists, an immunologist/vascular doctor. I was on 15 different prescription medications but, my symptoms kept getting worse. I had hives so big and thick that they hurt down into my bones. They were so bad on my feet that it felt like I was walking on golf balls and had to crawl around the house because of the excruciating pain. The hives would distort my face so badly, I was unrecognizable. They itched and burned as they covered my body leaving huge bruises. The Doctors used Prednisone, multiple oral chemotherapy, high powered antihistamines in quadruple doses to gain control of the hives ravaging my body....to no avail. I was to the point where I didn't want to live. I decided to go to an integrative doctor to see if I could get ANY relief. She compounded bioidentical hormones, thyroid, and Benadryl which help immensely. She did food sensitivity, environmental, chemical, heavy metal testing discovering sensitivities to many of these including: corn, gluten, soy and preservatives in which many of these are fillers in prescriptions. I HAVE to have my meds all compounded to avoid these ingredients that are making me sick. PLEASE DO NOT take the compounding away from me! I cannot function or live without them! My quality of life DEPENDS on them!

Hear their stories. Protect their own words. Protect their access to compounded medicines.

On this page, we can only touch on the data that demonstrates the importance of compounded medicines to the lives of millions of people in this country. While the decision to take this vital therapy from patients and physicians might be profitable for big pharmaceutical companies, it will be disastrous for the millions of patients that those same pharmaceutical companies cannot serve!

We encourage the appropriate committees in both the House and Senate to hold hearings on this critical issue.

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