Patient Stories

Not having proper Thyroid medications and doses can be life threatening.

Written by Fitzmartin | Jan 13, 2023 5:38:33 PM
I have a disabling medical condition, Mast Cell Activation Syndrome, MCAS, that causes severe allergies and chemical sensitivities. I have required compounded thyroid hormone medication which has to be made in a clear gel cap and made in an olive oil base because I am severely hyper-reactive to many dyes, preservatives, and fillers. I also need less medication than many people need. Manufactured thyroid medications don't come in the small doses I require and they have fillers that I have adverse reactions to, which can send me to the ER. Not having proper Thyroid medications and doses can be life-threatening. I have needed other compounded medications over the years since I need smaller doses that are dye free, preservative-free, and use fillers and carriers so that I will not have adverse reactions to them. For example, I had to take a low-dose hormone replacement therapy medication that was only made by a pharmaceutical manufacturer. It was made with an iodine preservative as many of the low-dose birth control medications used for HRT are made with and use dyes. I was taken away by ambulance at 1 am after my first dose with my throat tightening, vomiting and shaking out of control, and heart racing and brought to the ER for stabilization. This is just another example why I require compounded hormone medications. We are NOT all the same and some do better with custom-made compound-made medications at the doses that work for our needs.